Ready for Rare Disease Day 2024

We are so excited to share our #raredisease experience of #gsd1b this year for Rare Disease Day! #glycogenstoragedisease1b is sometimes described as “one in a million” but accurate estimates are difficult to make with a small population spread out all over the globe. Though we may be small in number, we are not small in our strength as a community or in our efforts to #curegsd1b. Here are just a few of our zebras! If you would like your GSD1b loved one to have a profile photo for Rare Disease Day, email us at and be sure to follow us on Facebook and Instagram for other Rare Disease Day content!

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