2023 AGSD Conference in Orlando, Florida!
The 2023 U.S. Association for Glycogen Storage Disease conference in Orlando, Florida was held in late June, with strong GSD1b representation. Over 50 1b patients
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The 2023 U.S. Association for Glycogen Storage Disease conference in Orlando, Florida was held in late June, with strong GSD1b representation. Over 50 1b patients
Being an autosomal recessive disease, parents who carry GSD1b mutations have a 25% of having a child with GSD1b with each pregnancy. This means there
Rare disease patients do not come with a handbook, and whether they are 30 days or 30 years old, there can often be very little
(as told by a GSD1b family) The term glass children refers to “siblings of a person with a disability. The word glass means people tend
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