Jamas LaFreniere joins Effie Parks on the Once Upon a Gene Podcast
Jamas LaFreniere is the rad dad to Sophie, who has an ultra-rare glycogen storage disease called GSD1B. He’s also the founder of Sophie’s Hope Foundation
Jamas LaFreniere is the rad dad to Sophie, who has an ultra-rare glycogen storage disease called GSD1B. He’s also the founder of Sophie’s Hope Foundation
Chocolate Bar Book! Watch this short video about the inspiring story behind The Chocolate Bar Book and Jonah Pournazarian.
This week, we speak to Jamas LaFreniere, president and founder of the Sophie’s Hope Foundation and CureGSD1b — two nonprofits dedicated to finding a cure
Sophie Charity Golf Event Thank you to everyone that contributed to and / or participated in the 2nd Annual Swings for Sophie Charity Golf Event
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