GSD1b Strong: Patient Spotlight. Remembering Kim…
The GSD1b community owes much of its strength to the adult 1b patients who continually provide wisdom and support to patients who came along after
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The GSD1b community owes much of its strength to the adult 1b patients who continually provide wisdom and support to patients who came along after
In a recent piece for the Courageous Parents Network, GSD1b caregiver Margot LeFreniere articulates life with GSD1b as a chronic crisis existence, where 24/7 management
In the spring of 2023, Sophie’s Hope Foundation and CureGSD1b started organizing and facilitating monthly support group calls for GSD1b patients and caregivers. The calls
Sophie’S Hope Foundation had an amazing day on Monday for the 4th Annual Swings for Sophie Charity Golf Event, presented by EchoStor Technologies. There were
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