Riding for a Cure: 1,000 km Across the Alps for GSD1b
Progress in GSD1b doesn’t happen by accident. It takes families willing to share their stories, a strong patient organization coordinating research and support, and a
Progress in GSD1b doesn’t happen by accident. It takes families willing to share their stories, a strong patient organization coordinating research and support, and a
Join us for a special Ask The Expert Webinar on Women’s Health in GSD type 1 (a and b) on Wednesday, September 30, 2026, with
Living with hepatic GSD is about so much more than lab results and treatment plans. Watch the Ask the Expert webinar with Dr. Florence Kinnafick
Huge congratulations to Krissie Rothermel, mom to a GSD1b warrior, for conquering the Boston Marathon on behalf of Sophie’s Hope Foundation and CureGSD1b! This was