March 26th: GSD1 Teen and Young Adult Virtual Meet Up!

Our first GSD Type 1 (1a and 1b) Teen and Young Adult call now has a date! Mark your calendars for Tuesday, March 26 at 8:30pm ET/5:30pm PT. This call has a child life professional as moderator and is organized for patients only (no caregivers please). We are super excited to be able to offer this support to teens and young adults in the #glycogenstoragedisease1a and #glycogenstoragedisease1b communities. Please help us spread the word. If you are interested in participating, please send an email to Margot@sophieshopefoundation.org to receive an invitation/meeting link.

#curegsd1b #glycogenstoragedisease #glycogenstoragedisease1b #gsd1b #glucogenosis1b #glucogenose1b #glikogenoza1b #Glykogenose1b #raredisease #neutropenia #empagliflozin #hypoglycemia #metabolicliverdisease #geneticdisease #patientadvocacy #immunecompromised #inheritedmetabolicdisease #vongierkedisease #glycogenstoragedisease1a #supportgroup #peersupport #patientledadvocacy #pao

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