Life with GSD1b: Chronic Crisis Existence

In a recent piece for the Courageous Parents Network, GSD1b caregiver Margot LeFreniere articulates life with GSD1b as a chronic crisis existence, where 24/7 management and the need for perfection take physiological crisis response and extend them to a state of perpetual stress for body and mind. Click the link below to read how this life has impacted one GSD1b family. Thank you, Margot for sharing your experience with the rest of us!

READ the full ARTICLE here!

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