Brooks’ story is one that resonated with other GSD1b families– where a seemingly routine doctor’s appointment for symptoms that could be attributed to many things (including routine childhood illness), became the turning point for a life-altering diagnosis. Click through the slides below to read his family’s experience from diagnosis to daily life, what it means to be an advocate and what their hopes for the future entail . #curegsd1b
Brooks– draft (Square) by Blair Schneider