GSD1b: Strong Patient Spotlight– Mia!

Why do we tell our stories? So a newly diagnosed family can see themselves in a story and know they are not alone. So a researcher can see how what they do in the lab translates to the life of a patient. So another community member can learn from those walking before them. So a doctor can get a glimpse of life with the disease outside of the few minutes they spend with a patient. And so companies working on treatment for this disease can see a face rather than a number.  This week’s #warriorwednesday features one of our newest #curegsd1b community members— Mia! Huge thanks to Mia and her family for sharing their story and helping us connect, build community and educate about #gsd1b.

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