GSD1b Strong: Patient Spotlight– Jenni

As we have mentioned before, the 1b community does not have many adult patients, because the nature of the disease and treatment has not led to many patients surviving to adulthood until the last few decades. Sharing the voices of our patients, and the wisdom they bring to our community and the wider-world is one of the biggest reasons we created this series… and amplifying the voices of patients who have lived full lives with this disease and now share their perspectives in adulthood is something we hold especially dear. So, without further delay, here is Jenni’s story on how her life with 1b has added value to the world around her, the power of a supportive network of friends and family and how she gets through her hardest days (hint: ☕️ + 🐾).

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