We have created a very simple 1-minute questionnaire using Google forms to help us capture some very basic demographics and contact information. This data will not be shared with anyone and will give us a more effective way to communicate with the GSD1b community about events, research updates, etc. By filling out this form you will be added to the CureGSD1b organization and be assured of receiving important updates. We currently have the forms available in English, Spanish, Italian, Portuguese, German, and Turkish.
Please reach out to Jamas jamas@sophieshopefoundation.org if you would like to help create in any additional languages. Access the Google forms questionnaire here (you do not need to have a google account):
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