In 2024, Sophie’s Hope Foundation co-founder Margot LaFreniere wrote a children’s book to help patients, caregivers and teachers educate students on GSD1b. Purchase the book and share with your classrooms HERE:
Medical Needs at School from the Medical Home Portal:
IFSPs, IEPs, and 504 Overview from the New England Regional Genetics Network:
IEP vs. 504—What’s the difference? By Special Mom Advocate:
Guide to 504 Accommodations from the Pennsylvania State Education Association (along includes detailed information about what the process entails and how a 504 can be written, as well as accommodation considerations by disability:
Sample Template of a 504 plan by ProKids:
