Coming soon! GSD1 Teen and Young Adults Virtual Meet up

One thing we often hear about growing up with an ultra-rare disease is “I wish I had known people like me growing up.” With that in mind, and after a lot of planning, we are excited to announce that our virtual meet ups are expanding to a NEW GSD Type 1 (that means type 1a and 1b!) group for TEENS and YOUNG ADULTS! Calls are for patients, not caregivers, and will have a certified child-life specialist as facilitator. We are aiming for our first call to take place in March. For call information, announcements and meeting link please email margot@sophieshopefoundation.org, or leave your email in the comment or via direct message. And please help us spread the word to any 1a and 1b teens and young adults too!

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