Coming soon! GSD1 Teen and Young Adults Virtual Meet up

One thing we often hear about growing up with an ultra-rare disease is “I wish I had known people like me growing up.” With that in mind, and after a lot of planning, we are excited to announce that our virtual meet ups are expanding to a NEW GSD Type 1 (that means type 1a and 1b!) group for TEENS and YOUNG ADULTS! Calls are for patients, not caregivers, and will have a certified child-life specialist as facilitator. We are aiming for our first call to take place in March. For call information, announcements and meeting link please email, or leave your email in the comment or via direct message. And please help us spread the word to any 1a and 1b teens and young adults too!

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