Living with hepatic GSD is about so much more than lab results and treatment plans. Watch the Ask the Expert webinar with Dr. Florence Kinnafick (Loughborough University, UK) where she shared her research on the emotional and social impact of living with Glycogen Storage Disease type 1b. We explored how GSD shapes identity, relationships, mental health, and daily life – and how we can use this information to improve the lives of patients and caregivers with GSD1b.
Watch this webinar and all the others on the Sophie’s Hope Foundation/cureGSD1b youtube channel!