Welcome to CureGSD1b! We are an all-volunteer non-profit organization dedicated to helping find better treatment and ultimately a cure for Glycogen Storage Disease Type 1b. The goal of this organization is to help provide guidance and bring collaboration to all people and organizations working to develop treatments and a cure for GSD1b. This organization was born from two fathers working together to help cure their children. Although we had two separate foundations, we quickly learned how important it was to work together and how much more effective and efficient we were.
We have grown to include a diverse group of members and advisors and have already started to bring organization and leadership to the GSD1b community. We are also helping to raise awareness and elevate GSD1b’s status in the world of rare diseases, while doing everything we can to break down all barriers to progress. All fund raising will be done by individual organizations that are Alliance members. The CureGSD1b website is funded and operated by Sophie’s Hope Foundation, which is a registered 501c3 charity dedicated to improving the lives of patients with GSD1b (Tax ID: 84-5014314).