Registry Coming Soon!
Welcome to the CureGSD1b Alliance. We are a non-profit organization dedicated to helping find better treatment and ultimately a cure for Glycogen Storage Disease Type 1b. The goal of this organization is to help provide guidance and bring collaboration to all people and organizations working to cure GSD1b. This organization was born from two fathers working together to help cure their children. Although we had two separate foundations, we quickly learned how important it was to work together and how much more effective and efficient we were. We are hoping we can inspire more folks to join this fight to cure our children. Please don’t hesitate to reach out with any questions. All fundraising will be done by individual organizations that are Alliance members and all grant requests will go through them as well. The CureGSD1b website is funded and operated by Sophie’s Hope Foundation, which is a registered 501c3 charity dedicated to improving the lives of patients with GSD1b (Tax ID: 84-5014314).